I've written about hard subjects before, just take a look at my previous posts about anxiety, panic attacks and the EU referendum! But this is one of the hardest, maybe the hardest, at least for me. It may not seem that way when you read it, but this is a blog post I never thought I would have to write, about a subject I never thought would affect me. But affect me it has and it has hit me hard. I'm annoyed at myself because it feels like it's mostly my fault.
How thin do I look? I can't have been healthy!
I am close to being overweight, almost 11 stone, when for most of my adult life, I've been around 9 stone. Now I don't want to go back to that weight as I think it was unhealthy. However I reckon I have put on a stone and a half over the past year or so, I feel unhealthy with it and I should lose that. Luckily I can fit into most of my clothes still because I wear leggings, but I can't wear my jeans anymore. If I carry on like this, I'll have to go up a dress size. I have no excuse, but I have reasons. To try and make sense of why this has happened, to come to terms with it and hopefully do something about it, I'm writing this blog post.
I will have to go back to my childhood to explain. I was never interested in bad food: fast food, burgers, takeaways. I prefer simple food, simple ingredients, unadulterated meals. I'd choose a salad over a McDonalds. I don't like sauces, not even ketchup on my chips. I'm more interested in fruit and veg than sweets and cake. In fact, the first time I was off school sick, it was because I ate too much fruit! Even now, I can't walk past a fruit bowl without being tempted. When I was a teenager, people used to joke I was anorexic and I took it as a compliment. They'd pick me up, exclaiming how light I was. I was proud of it! But I never courted it. I just wasn't interested in food, never was. I'm still not really interested. I eat to live.
I love fruit, all fruit, even exotic fruit like snakefruit (right)
Things changed when I turned sixteen when my anxiety hit and I started having panic attacks. My life spiralled out of control. I went from having little appetite to having none at all. I still don't really have an appetite as such. I developed an eating disorder where I found it difficult to eat. It was both a symptom and a way of coping with my mental health problems, trying to control something when I couldn't control anything else. I stopped eating altogether at one point because it was easier than fighting through what I called the upchuck reflex. My friends had to forcefeed me when I started shaking uncontrollably. Since then, I haven't had a normal relationship with food, not liking eating in public for instance. My appetite, what there is of it, is the first thing to go when I'm ill, mentally or physically. When I can't eat fruit, I know it's serious. It's become a canary in a coal mine for me.
Now I have a handle on my anxiety, which used to sap my appetite, I have to deal with one. I must have had one before my anxiety hit, but that was more than 20 years ago and I don't remember. So when people learn to manage their appetite from childhood to adulthood naturally, I've had to deal with it all at once, which has been a bit much.
This is me under there!
However, apart from sugar cravings during that time of the month, I've been managing pretty well. That's why putting on so much weight is a surprise to me. It started before lockdown, before I knew I had endometriosis, which makes me bloat. My weight shot up on medication for my balance problem, but it went back down when I stopped taking it. That was the first time I went over 10 stone. I'm now on medication for the endometriosis and putting on weight is a side effect, but not to this extent and I'd prefer to take the tablets as the benefits outweight the weight gain. They've stopped the sugar cravings for one!
Due to my balance problem, I don't sleep well; I often wake up in the night and I sleep very shallowly, so anything can wake me. Sleep problems can make you put on weight, or more prone to putting on weight.
Me asleep(ish)
I'm not a great one for exercise and with lockdown, I'm currently only going in to work once a week; my cycle commute is my only real exercise, which was enough before, but it seems no longer. I will have to start exercising properly, which will be hard and I'll have to be careful what sort of exercise I do because of my balance problem. I definitely need to improve my cardiovascular health. The other thing is when I exercise. It takes me an hour to even get moving every morning; to say I'm not a morning person is an understatement. Vertigo upon waking due to my balance problem makes me groggy, so exercising before work is out. I'm knackered after a day working and exercise will knacker me further, for the usual reasons, but also my balance problem makes most physical things tiring. So I'm going to start at weekends and see how I go.
When I could fit in a dress like this
I don't eat unhealthily, but I do rely on ready meals and frozen meals at least once a week. The weird thing is, I eat the same thing as my brother; he has larger portions and eats more chocolate bars than me, but exercises less than me; even on our lunchtimes walks, he dawdles, whereas I try to keep the pace up; and his weight has barely changed.
Stress can do weird things to the body, to the hormones and goodness knows we've had enough stress lately. But I thought I was coping with 2020 okay, surprisingly well given my history of anxiety, including all the mental whiplash when things kept changing and first I was going to go in to work 2-3 days a week, then 4 days, and now one day a week. I had a few wobbles in the beginning, but maybe underneath I'm not coping so well.
One of my favourite photos of me, with my nephew Thomas
So between my endometriosis, balance problem and anxiety, which all cause the insomnia, that may be the reason behind my weight gain. This means it's not as much my fault as I thought. But the biggest cause is probably my age. I noticed a difference in my metabolism when I entered my 30s. I guess I can't eat what I'm used to eating without consequences anymore. So even though I haven't changed my diet any over the last few years, maybe even being a little healthier, I'm going to have to now. However with my history of an eating disorder, caused by the need for control, I'm going to have to be careful. I'm cutting sweet things out of my diet, which is no hardship, it's been easy over the last few days. I mostly eat them when I'm bored or watching TV. But I'm going to miss my Mum's flapjacks and scones. Then I'm going to build up to fewer carbs like bread (which I adore), pasta and rice. But I know it's bad to cut out food groups altogether, so everything in moderation. I will try to eat more vegetarian meals as well, I tend to choose them off the menu anyway. So all signs point to the fact that changing my diet should be relatively painless.
Turning 30
The first step has been getting over myself, stopping feeling sorry for myself and thinking this is temporary. I'm going to have to do all this as the trend in my weight has been steadily increasing; it's only going to go one way and will continue that way unless I do something. I have to lose the identity of my younger self who could eat anything and stay thin. I should also eat more slowly: due to my eating disorder, I ate fast to beat the upchuck reflex, otherwise I would have ended up eating nothing. That habit has stuck and I don't need it anymore.
I'm going to have to strike a fine balance between the problems exercising with a balance problem and changing my diet with an anxiety issue, but I'm up to the task. I'm the little girl who stopped biting my nails because I hated the way they looked, just like that. I decided to stop, so I did. I'm the teenager who stopped drinking alcohol because I knew I was drinking to drown my anxiety, so after my third hangover, I stopped. I now only drink on special occasions like celebrations and then only a few sips to be social. I got over a breakdown and am managing my anxiety. I've dealt with two chronic illness diagnoses and live with the symptoms daily. I can beat this too. All I need is an incentive like I've had before and one look in the mirror at the body I don't recognise anymore and one walk upstairs which makes me out of breath, that's enough incentive to be getting on with.
The most body confident I've been, taken by Dave Amann
This blog post has been many months in the making, so warning, it is rather long. It's worth a browse at least, especially with wonderful videos from Travis and of The Princess Bride, and a few pretty photos taken by me. So far, so normal for me and my blog posts. I initially called this post Back to Normality, but I added the question mark as I don't think anything will ever be truly normal again. It's not the 'world is coming to an end' apocalyptic anxiety-fueled feeling I had at the beginning of lockdown, but a more realistic view that attitudes will have changed forever because of what we've been through. I'm faced with some normality in going back to work next week and I'm both fearing and relishing the prospect. I have been back, briefly, once for some filming and it was surreal, but nice. My body didn't like it though as I got all sorts of aches and pains, including in my wrist, pelvis and butt. I blamed the bicycle at first of course! When you cycle twice a day, 5 days a week, for 7 miles every day, your body gets used it. It has definitely regressed these past 6 months. 6 months! Otherwise, I've been working all through lockdown from home, which I've never wanted to do, mainly because I knew I would enjoy it. I have social anxiety and I'm practically a hermit as it is, only seeing close family on a regular basis. So work interaction is the only thing that stops me from not having a social life altogether and I'm afraid of how much I've regressed in that sense too. But being at work will build that back up with no pressure.
Screenshot of the filming
Filming at MMLL
Anxiety has been preparing me for the worst for 20 years, with what ifs and thought spirals, so the pandemic hasn't hit me as hard as others in some ways. However concerns about how the virus would impact me, my family and loved ones have caused a lot of anxiety and one of the things that has helped is living in the moment, escapism and writing this blog post. I've been dipping into it every once in a while over the lockdown period and writing it as if lockdown had ended worked. Lockdown has been relatively easy for me, with no one close to me catching it, no one losing their job and no one being furloughed. It has actually limited my anxiety and I'm worried how much it's going to come back when I return to the world properly. But with everything uncertain about whether there will be another lockdown and a resurgence of the virus, I know the anxiety will always be with me. Uncertainty over the return caused some weird anxiety dreams that left me unsettled, but they disappeared once I knew what was happening. Now though, with the increased restrictions and the threat of a second wave just as term starts and I'm going back in to work, I'm not sleeping as well. Last night, I tried all my usual methods of getting back to sleep; I usually wake once in the night between 2-4am, but go straight back to sleep. I resorted to an unorthodox method of doing a puzzle from the puzzle book I keep by the side of my bed, which I dip into every now and again if I'm feeling jittery and it calms the spiralling thoughts in my head down, probably by focusing my mind. I had so many at 2am this morning and the puzzle worked. I'm glad my anxiety disorder is manifesting in tears and dreams and disrupted sleep rather than panic attacks. At this rate, I may have to break into my magic painting book; I loved them as a child and it's a great productive, mindful nostalgia hit.
Forget colouring books!
Lockdown for me started in quite a dramatic fashion. I was due to go on holiday to Costa Rica, where my oldest brother and his family live at the moment, the Wednesday before lockdown. We were determined to still go on holiday as there were no restrictions then, despite the fears of catching the virus in the airport and on the plane. But the day before we were due to leave, the border closed. Our flight still went ahead for repatriation purposes, so we initially received no refund, even though it was effectively cancelled for us; apparently we could still have got on the plane, but we couldn’t get off it. Thousands of pounds just for two 11 hour flights and no holiday? We then got a voucher which would have locked up the money until hopefully the world got back to normal, or we could at least fly again, but it was only valid for 12 months… Finally, after a battle involving numerous telephone calls and emails, with the airline admitting a mistake and a very helpful customer service person working from home on our side, we got our money back. We got all our money back from the holiday in the end from car hire to accommodation, but it took months. We were incredibly lucky as many people are still waiting for their money, especially from BA.
A hummingbird in Costa Rica
After that and still to this day, it's been difficult not to think about where we’d have been if the holiday had gone ahead and if we'll ever get back there. But everyone has been thinking the same, what would they have been doing if the restrictions weren’t in place, plus the holiday would have been so different with restaurants shut, places closed and beaches forbidden. The border has only just starting opening there again, unlike here where it never really closed. There is a comfort in that we're all in this together. The heartbreak for me is that the holiday had been two years in the planning and it was difficult to undo all the preparations. We were visiting family and we have piles of stuff we were going to take out to them that they couldn’t get out there, plus presents as we didn’t see them for Christmas or birthdays. I had last-minute appointments at the dentist's and with my doctor, I got my medication early, stockpiled contact lenses as I wouldn’t have had enough, renewed my passport early, bought new clothes, wore clothes I didn’t want to take on holiday, got a haircut, bought toiletries to make sure I had enough, made packing lists and all were totally unnecessary and were constant reminders of what was not to be. However they came in useful when the country went into lockdown, closing dentists so my tooth pain would have caused me anxiety all through lockdown, hairdressers, making things more scarce in shops and every time you stepped into a shop or doctor's you were at risk, we still are.
A Costa Rican sloth
When I knew the holiday wasn't going ahead, I still had to go to work, but when I found my bike had a puncture and our attempts of fixing it took too long, I phoned work and they told me not to come in as I was on half day anyway, taken so I could pack and prepare for the holiday. That's when I broke down in tears, which were good because it meant I wasn't having a panic attack! All the usual anxiety about going on holiday and flying on a plane, plus the anxiety over the virus came to a head; it was a cathartic release. I called my parents as I was afraid I wasn't going to see them again for weeks, maybe months. This made me cry harder. I had the day off sick, used the rest of the week as leave to sort things out, trying to cancel our holiday and then I started to work from home with everyone else on the Monday.
It took a while to settle, nights were the worst, they always are with my anxiety. I went to bed early each night to stave off the panic; it's better to wake up early with it, than have it interfere with my sleep. That said, I had no real panic attacks, just anxiety attacks and randomly my temperature shot up in the evening, which didn't help as we had no thermometer, all sold out, so I couldn't check if it was a Covid fever or not. I reckon it was anxiety or my endometriosis. In the end, we bought a baby kit just to get a thermometer. Luckily, one of my managers had given me some hand sanitiser before lockdown for our travels, so we had enough of that. After a period of not being able to eat very much, I improved after I realised I’d have to move in with my parents if I didn't get better so they could look after me, like they looked after me after my breakdown in 2013. My fears of passing the virus on to them actually helped me get my act together.
I couldn't have made it through this alone: me and my brother in Costa Rica
At first, I avoided all news, getting my brother to tell me anything I needed to know; each time I caught something on the news or on an app, I could feel my anxiety rising. He has been a rock during this whole time, generally unflappable, and he worked from home for about 3 years, so he's an old hand at it. As I adjusted to the 'new normal', I felt strong enough to read or listen to the news myself and it became a regular lunchtime tradition watching Nicola Sturgeon's daily briefing; she was much more reassuring, assured and compassionate than the PM. Other things that helped get me through were Orkney Library's jigsaws, Only Connect style walls and webcams; I got my fix of the outside and more global world from zoo cams, the Salisbury cathedral peregrine falcon webcam, the Tresco island live cameras of the beach and gardens, as well as Arenal volcano in Costa Rica. We checked in with my parents every day to ease my mind and theirs after dinner, swapping news, sharing photos and doing quizzes and puzzles; I send them the Times polygon every day.
Early on, I got a weird cough that I couldn’t cough that sat on the top of my chest that meant I couldn’t breathe as easily. This was not good as it mimics anxiety attack symptoms, but it was not as bad as it could have been because it also means I’m used to living with these symptoms. Knowing that every cough, either my own, from someone close to me, or a stranger created paranoia, we kept in the house, but as it didn't fit the symptoms and we had no others, when it went away after a few days, with my brother having it after me, we didn't isolate.
The coaster on my desk, John Ruskin
If I was furloughed, I don't think I would have coped, or gone into a film and TV induced escapist coma. Luckily, I could work from home, but only after some computer woes, working on my brother's laptop while we sorted out a PC for me; my PC is Windows 7, so that was automatically out. Luckily, I was given a free Windows 10 PC when I was at Homerton. I tried to stick to my usual hours for familiarity's sake. Creating a routine was crucial; routines are a boon for anyone with anxiety. That said, I tried not to replicate my old routine at home as it would have been a mental health crutch. I used it as an opportunity to be more flexible, as much as you can be with restrictions in place, such as having different things for lunch rather than my usual sandwich. I still woke up at 6.30am every day despite not setting my alarm anymore, though that is when the heating comes on and the boiler is in my room, but it continued over the Summer too. I didn't do much with my extra hour in bed, I needed it to read the news and wake up properly, as without my morning commute to wake me up, it was difficult to get my brain cells moving in the mornings. Separation between work and home was also less easy. I wore comfortable clothes and no make-up, contact lenses or jewellery. When I had to switch between working for one library and the other, I would use my lunchtime to switch mindsets or have a quick break. I used my dressing gown as a way of telling my body I’ve finished work and watched an episode of something between work and having our dinner as a stop-gap. Creating a distinction between the weekend and weekdays, was not just getting up later and no work, I tried to do different tasks each day, but despite my best efforts, sometimes the days blurred.
I kept my same core hours of work, allowing myself more flexiblity in the mornings if I woke up feeling bad. Drinking enough was key, I was so used to drinking from my water bottle all day: instead of a litre water bottle on my desk, I had a small glass which forced me to get up regularly. Getting outside at least once a day helped me feel like I could breathe deeply, shallow breathing was common for me during those first few weeks, even if it was just the back garden: nature is the best soother. My home desk is next to the patio doors to the garden, so I had a lovely lookout and often watched the birds and next door's cats; after one cat downed a pigeon (it went to the vet and was never seen again), we convinced her to put bells on their collars. All was good after that. I did some gardening every day, usually picking up fallen apples and dead-heading roses, which is very satisfying and makes them last longer, we still have some growing even now! We also loved seeing our wild flowers and vegetables growing; our courgettes have been a great success.
Our rose bower
My brother and I developed a lunchtime routine, coordinating our lunch breaks so we could eat together, as far as meetings and workload allowed, and then going for a walk, our one allowed outing a day during the restricted times and sticking to it when restrictions eased. Pokemon Go gave us the impetus to explore our local area and we now have some lovely nature walks across fields and meadows. We saw Spring change into Summer and now Autumn. I miss the quiet roads and empty pavements, now I'm having to adjust to traffic noise again. Each trip out to the shops was atrocious, my anxiety rose and my vestibular system got knocked out. One time, I sat in the car while my brother loaded the shopping, staving off a panic attack. But I knew if I said anything, my parents would insist on doing their own shopping and worries about their health spurred me on. Sometimes we have felt like the parents when they have sneaked out to the shops instead of asking us to. We have considered grounding them! They are in the at risk category due to their age and health conditions, but not in the shielded category. They are definitely taking the pandemic less seriously than their children. Now, shopping trips are mildly aggravating, but I can't wear a mask. I wrote a blog post all about why.
A good thing happened during lockdown; I got so annoyed at the quizzes my brother's workplace was sending round, taken from The Sun or the Daily Mail, that I created my own for them. I themed each week, starting with IT as that's the field they work in, doing three quizzes of 30 questions a week, starting with a word round like anagrams, a general knowledge/trivia quiz and then a picture round each Friday. They loved it so much we were sent a box of chocolates, funded by their HR. But comments I received meant more, especially the one who said it was the only thing that got him through the day: that was early on in lockdown. This then lead to a few of the quizzes being sent round to my work colleagues as well. My favourite was my lockdown landmarks picture quiz, with photos of empty tourist sites around the world. This week is my last week as I won't be able to continue now I'm returning to my workplace, so I'm ending on a high with a music round: name the song from its intro.
My birthday cake
Regarding work, my colleagues have been brilliant, in both libraries in different ways, even sending me a birthday cake! In one library, we had a virtual team meeting every day and had lively discussions on Yammer and Teams, the other library was more hands off with meetings twice a week, which were less about work and more about socialising and checking in with each other. These meetings became fewer as we got into the Summer. There were social meetings for all librarians in our area, so I got to see different faces. I also had rants with my ex-colleagues over Facebook Messenger, mostly about their workplaces and world politics. I found Zoom and Teams meetings quite draining, especially with the larger numbers: one time there were 200 of us! It's when you feel everyone is looking at you, luckily most people turned their cameras off, it was only for the smaller meetings we could see each other. Plus, I find it stressful seeing myself. So I tried to take time out, do things away from the screen when I wasn't working, even if I did one chore a day, it was something. I also took holidays, two weeks at home watching the tennis and trying to be productive, and a recent holiday away to a cottage in the middle of a tiny village. I marked the cancelled events, watching the 2008 Wimbledon final between Nadal and Federer during Wimbledon fortnight, the Glastonbury programmes and the 2012 Olympics opening ceremony when that should have been on, which was the epitome of bittersweet as it made me proud all over again, but I also cried to see how much the word has changed with the referendum and such. Instead of all the video calls, virtual meetings and messaging, the best thing for my social side was embedding myself in the communal aspect of working remotely, mainly joint ventures such as; helping the ebooks team with requests and purchasing, which is still ongoing with my buying ebooks for other libraries, maintaining my knowledge and working in an area I have been involved in for years; deduplication of catalogue records, which has helped me improve my cataloguing skills; and most recently creating an introductory video to our libraries, teaching myself how to use new software. Learning new skills in such challenging times has been a real boon and showed me that I can do more than I realise.
Winnie the Pooh quote
I have tried to be kind to myself, not question or judge myself, just doing what I have to in order to get through. Everyone had grand plans of what they could do with the extra time on their hands. Me, I thought I could start putting together my book idea, but I found it hard even to read books at first, let alone write one. I was going to make good use of the last week before going back in to work, making porridge for breakfast instead of just having one of my Mum's flapjacks and a banana, but that didn't happen. Saying that though, I did listen to more music and took notice of all the things I've been grateful for working from home. Putting on a stone would normally get me down, but I know I will lose weight once I start cycling to work again. If it was watching children's programmes, reading chicklit or binge-watching television, whatever worked. Familiar shows like The Repair Shop, Merlin and my favourite ever TV series Alias, (which is now on Amazon Prime) have really helped. I'm very pleased The Great British Bake Off and Ghosts are back and the new All Creatures Great and Small is very welcome. Another great thing was the lockdown version of The Princess Bride, it was on Quibi, but you can find a taster on YouTube below. I didn't need music as much as I thought, I can't listen to it and work at the same time as I used to, only when doing tasks that don't require much brain power. But when I worked at the police station inputting data, I used to work with music playing all the time. When I played the playlist I made
of music from that time, including Ruby by
the Kaiser Chiefs, How to Save a
Life by Razorlight and Standing
in the Way of Control by The Gossip, it reminded me of a time when I was stronger than I ever thought I could be, which was confidence boosting. It also helped to block out the kids
playing in the garden next door, while also tapping into happy memories of when life was easier, fooling your brain for a while.
It
was okay to let things slide; there’s no need to dress up or wear a bra, put
in contact lenses, put on make-up or even wash your hair as regularly,
unless you feel you need the mental boost or it’s good for the motivation. I
did do more if I was video conferencing though; you have to be more aware of what’s on
camera and I made sure what I wore was what I wanted people to see!
Compassion for others was something I let slide for a while, it usually comes naturally to me as I'm a highly sensitive empath and take on the feelings of others, but when I'm in anxiety mode, that disappears. Our neighbours, who flouted lockdown rules, having people from other households over, going out whenever they wanted and even hosting a birthday party in their back garden with many people round, were the subject of many rants. My poor brother also got nagged more than normal as minor irritations became major. Happily, that has improved, though I still nag my brother!
Finally, the essential thing that got me through lockdown, was owning any feelings I had:
Grief over lost holidays, missed celebrations and not seeing loved ones
Denial
was necessary to be able to process everything, escapism through TV and
films
Sadness
that life has changed so much
Anger
about how the situation unfolded and was handled
Bargaining,
being flexible within the restrictions
Acceptance
came as everyone adjusted to the new normal
Pride was the overarching feeling when I look back on it all; not just pride of the NHS, which moved me to tears on numerous occasions, with my very English polite clapping on a Thursday turning to saucepan banging; pride of key workers of which my sister-in-law is one as deputy head of a school; pride of friends and family and how they adjusted to it all; pride of my colleagues and how they carried on regardless; pride of my library community and all the services they have set up, how they have not just muddled through, but adapted; and pride of the University in which I work, world-leading in so many ways, but generous, compassionate and caring throughout, making sure the welfare of everyone is paramount, both mental and physical. There's also pride in myself, not letting my mental health degenerate of course, but also how I've coped with work, learning new skills, making new connections and letting things slide at times, because I have a tendency to say yes when I shouldn't. As a side note, with the lessons learned over the past 6 months, appreciating what you have and those around you more, getting back to nature, slowing down, there have been some professional lessons too: ebook provision coming to the forefront, better relationships and collaboration with faculty over reading lists, working together more with other libraries, accessibility for everyone, disabled or otherwise, being key, and putting mental health first, all of which I have been involved with for years and have been trying to improve. They've all happened at once! I hope the world has changed forever in these regards, and with uncertainty everywhere, we are going to need our families, friends and colleagues now more than ever. I look forward to the day I can hug my Mum again and get a bear hug from my Dad; my brother isn't the most tactile of people, so I haven't had a hug from anyone since March. I may have to stealth hug him if I get desperate!
Finally, on a niche note, I am proud of my favourite band Travis for all they've done to reach their fans during lockdown, including releasing several singles, acoustic versions of their new and older songs and an awesome video of their hit "A Ghost" which the lead singer Fran Healy drew himself and their latest "All Fall Down", showcasing Fran's artistic skills. I see it as a lullaby for adults.
I have always been a law-abiding citizen and technically I still am. So why do I feel guilty? Because I didn't wear a mask in a shop. No one questioned me or even gave me a sideways look, though I felt very self-conscious and paranoid that everyone was glaring at me. Luckily, the supermarket where we do our weekly shop is Sainsbury's and they aren't enforcing the regulations unlike other shops. I want to thank them for not even confronting me for not wearing a mask, as it did cause me anxiety not to wear a mask and it would have made it worse being questioned. Just in case, I downloaded an exemption notice from the government website, planned a speech and rehearsed conversations I might have if asked: it's a symptom of social anxiety, I rehearse phone conversations routinely. I have anxiety enough not wearing one, believe me. But to wear a mask would have been far worse anxiety-wise; in the government's exemption terminology, it would have caused me severe distress. There were others who were unmasked, but they may have had a legitimate reason for being exempt like me. I just hope people don't abuse their compassion. It didn't help that I have been comparing people who do not wear a mask when they should to anti-vaxxers. It's the same principle; you are protecting others by wearing a mask and those who don't are relying on those that do to stay healthy.
Exemption notice
I will wear a mask if I'm nipping in and out of a shop or if it's a small place and I won't be spending much time there, but for larger places, I can't wear a mask. It's not that I don't want to, I really wish I could. It's that I fear what will happen if I do. When the announcement was made, an announcement I was dreading, I tried a mask out, when I picked up my prescription from the pharmacy and on a short car journey. Each was in a very controlled environment, but I felt claustrophobic, as if I couldn't breathe in properly, which is a major problem for someone with anxiety. It's one of the more minor symptoms of my anxiety disorder, usually, but I don't like feeling constricted; I don't like wearing scarves, I don't wear polonecks and when I feel anxious, I have to take off anything that makes me feel my breathing is being restricted, from jewellery to underwear. I never thought it would be an issue, but in these times, it has become one. I hate scenes in TV programmes and films where someone has to take their clothes off when they're having a panic attack, the classic is when they're stuck in a lift, but it is based on fact. So if I have that reaction to things around my neck, imagine how something over my mouth and nose makes me feel. I know masks have no effect on breathing, but anxiety cannot be reasoned with. For some people, masks are uncomfortable, for me, it can induce a panic attack.
I go out to one shop once a week to buy our groceries from the supermarket. I drive and my brother comes too to do our parents' weekly shop. We take 45 minutes or so to do the shopping, it's too much time for me to wear a mask. A few times during lockdown, I have been close to a panic attack due to anxiety about being around other people, fear of catching the virus yes, but not only due to my mental health, but also my physical health. I have a vestibular disorder which means my senses can get overwhelmed by seemingly innocuous factors and supermarkets exacerbate that: the neon lights, the rows of stacked shelves, other people moving about.
I was on the verge of a panic attack once, so much I feared I wasn't able to drive, this would have meant our shopping and our parents' shopping would be ruined. I took a deep breath before turning the engine on and then again when we got home. I know if my parents knew I felt this way, they would instantly say that they will do their own shopping from now on, but I am not prepared to put them at risk; they would be at greater risk as most people do not social distance once they are going round the shop, just queueing outside and at the tills.
This almost panic attack was before we had to wear masks. People will tell me to try wearing a mask and see how I go, find one I feel comfortable with. I have tried and not one makes me feel anything less than I cannot breathe properly and any symptom of a panic attack can bring on a panic attack with me, even increased heart rate from exercise or excitement. So the longer I have to wear one, the worse I feel and the more likely a panic attack will happen and the more I have to do while wearing one, the worse it is for me. With the added overwhelming of the senses, brain processing I have to do in the supermarket and the risk factor of having to drive afterwards, it is too much for me to wear a mask. You can put cool images on them and it will make me feel no different, even the one with Gandalf wearing a mask saying "you shall not pass" to the virus.
The Gandalf coronavirus face mask, available from Etsy among other places
Once I stop working from home, I don't know what will happen, but my workplace is investigating visors instead of masks, so I'm hopeful. I wish I could wear a mask, I really do. I believe in masks, I believe we should have been wearing them long before. I want to protect others by wearing one, but I cannot do so without severely affecting my mental health and during this time, I have had to protect it and will continue to have to for many months and maybe years to come. People with mental health conditions walk a tightrope, they know that one slip could send them on a downward spiral, and those are very hard to recover from. Even if I'm okay one time, it doesn't mean I will be the next. Mental health can be unpredictable like that. I have to be selfish here, but I have a legitimate reason to be, those who don't, please wear a mask.
Information users should also consider themselves information creators, reusing and re-purposing discovered content in different formats. Learners should understand how their discipline’s processes produce, reproduce and disseminate scholarly material. Learners consider their contribution to the body of knowledge through their original work and discipline’s scholarly conversation community of practice.
Personal
During lockdown, I have been creating quizzes, which is almost as enjoyable as taking part in them. This requires research, such as the one where I was finding photos of worldwide landmarks during lockdown. Some were easy such as musicians in films and TV, films based on video games and place names in song titles: that's what Wikipedia is made for! However the more difficult ones were anniversaries in 2021 (Ian Holm would have been 90 next year 😢), songs for our times (such as Don't Stand So Close to Me, Ghost Town, You Can't Touch This, It's the End of the World as We Know It (and I Feel Fine) and my personal favourite Que Sera Sera) and technology predicted by fiction (did you know the author William Gibson invented the word cyberspace?). It was all about how to find the information and then repurposing it into quiz questions. It was easier to search for the information in a way than searching as part of my work as there was a lot out there, but it was more difficult to find accurate sources and use the right search terms. Plus the process and structure of the content was set by me, so there was more scope to work with. I tried to theme the quizzes, such as Cambridge, doing three quizzes per week: one wordy quiz such as missing vowels, one general knowledge with questions and one picture quiz. I've had to revise some of the quizzes to make them fit; the technology predicted by fiction was going to be questions, but it had to change to alternate letters removed as I couldn't make the information I'd found into questions, without them being incredibly difficult anyway.
Finally, sending them proved more difficult as I used Word documents initially, but my edition of Word wasn't compatible with everyone's, so I changed it to PDFs, which has been working fine. I generated enough interest that instead of only my brother sending them to his work colleagues, which is where it started; I got exasperated by them using the ones from The Sun and the Daily Mail; it branched out to family and friends, and now the most applicable ones are going out to my A&H librarian colleagues. I've been broadening the audience through word of mouth. Getting such great feedback, making sure I'm pitching the questions at the right level and choosing appropriate subjects and fun themes has given me such a great confidence boost at this difficult time and has been giving me a welcome distraction. I'm going to do some book-themed questions next, just for my colleagues, or maybe even library-themed, if I can...
Professional
I wrote a series of articles for CILIP Update magazine, before the mass exodus; now I barely know anyone who suscribes anymore. I did it that way as it was a quick turnaround from submission to publication: ebook information can go out of date very quickly, plus I avoided the saga outlined in the Nature article. The articles were repurposed from my PG dissertation for my librarianship degree. I was told not to let all that research go to waste. I suppose my perspective was unique at the time, focusing on the industry and the librarian perspective, not the student experience. The magazine is less formal than academic journals, so I tried to make them entertaining, comparing choosing the right ebook model and platform to dating for instance. The structure and processes were set by the editor and the publication's house style, so working under such restrictions made the writing much simpler. The managing editor and I worked out the length of the articles, the timetable of when each would be published and I found free to use, creative commons images, then worked with the editor to choose the best image for the piece to fit the page. Everyone I worked with was a woman incidentally, apart from the images guy, so I was surprised to read Chawla's article on underrepresentation of women in peer review, but less surprised about the underrepresentation of non-Westerners.
Once I realised how locked down the articles were, only readable through the magazine to subscribers; I thought they'd also go on the website and as blog posts; I made them open access by checking with the editor who let me put them on my LinkedIn page. If you're interested, here they are: https://www.linkedin.com/in/sarahburton3/. The whole process showed me how naive and inexperienced I am, leaving me feeling a little lacking in self esteem. But after the publication there was a lot of great feedback and interest. I was asked to do some presentations at a conference and various meetings. I repurposed the articles into presentations for a formal conference in London and for library peers. There was a lot of repurposing into different formats and for different audiences going on! From dissertation, to articles, to presentations. Although it was a few years ago, the presentation is sadly still applicable as it covers the broad strokes:
Learners engage with relevant information in their
disciplines, develop workflows and strategically handle many information formats,
demonstrating identification, collection and collation. When creating and using
information, learners will understand value and ethics. Learners should appropriately
attribute, citing their sources and develop practical skills to manage their
range and variety.
Personal
I collect Beatrix Potter figures; it's a tradition started by my Granny who gave me a figurine as a present when I was young knowing I loved the books. After she died, my family has continued to give them to me as presents. I have more than 70 now and when it became difficult for my family to keep track of the ones I have, I started to create a list. When I learned my cousin had an accident where some of hers fell off her shelf and got damaged, I thought for insurance purposes I should document them. So I took two photos of each figure: one of the figure itself and one of the bottom where the maker's mark is stamped. Then I input the information into an Excel spreadsheet. When I was given a published collector's guide, I used it to identify the stamps, the variations in age and style and how much each figure is worth. It was also useful to work out which figures I didn't have already and which I would like. I looked at the pictures to see which I prefer and made a wish list. However that guide book quickly became out of date and a new one wasn't published. So I discovered a more recent list which has updated prices for the figures on the internet. So the Excel spreadsheet holds all the information on the figures I have, plus the ones I still need, their age, make, stamp and of course value. I have put it on the cloud as well for insurance purposes in case I lose the hard copy on my computer. It has been very successful for myself, my family has appreciated it as well because they know how much they should pay and it has meant I have been receiving far more figures!
Professional
Like many librarians, I use bibliographic software such as Mendeley or Zotero. I prefer Zotero as it was what I used during my library degree and I taught it during my time at Cambridge Judge Business School in 1-2-1s with students, during live demos in lecture theatres and small group teaching at Homerton College. We always made sure to emphasise that students should get familiar with the software and set it up as early as possible because it would be too late when it came to writing the first essay or assignment. The best work flow is to save everything you look at as you're doing your readings, your research and your searches. Creating folders for subjects, courses or assignments helps organise the sources better and it's easier to find what you need. I also used a Word document alongside it, typing or copying and pasting useful quotes, making sure to add the page numbers with them. This meant I had readymade citations and bibliographies when it came to writing my essays and projects. At Cambridge Judge Business School, we also had a team account and we saved interesting articles, books and electronic resources into it, such as for our Harry Potter themed teaching sessions.
It was as successful as it could be depending on the limitations of the software; it's good practice to check Zotero once you save the item that it had saved properly and make any edits to the information to make sure it was correct, had all the information that was needed and there weren't any weird errors or capitalisation. It also doesn't always recognise the item type, so you save it as a webpage and make the changes yourself manually. Then, when it came to adding the citations and bibliographies from Zotero into Word, they would be accurate. It has been very useful both personally and professionally for me, the teams I worked with and for the students.
In reading this all for thing four and writing this piece, it has made me realise I am equally at home managing information professionally and personally, in all aspects of my life. My examples demonstrate how I have worked with everyone in my life in a professional context and at home. Managing information in an ethical way comes naturally to me as I am a perfectionist, wanting to have all the information possible to hand, giving credit where it's due and needing to know where the information has come from. I feel this part of information literacy is where I'm strongest.
The Times diary TLS was asking for coronaverses, rejigging famous poems for the current circumstances. Mine was too long to use, but I got a lovely email back from someone at The Times. It is based on Ozymandias by Shelley:
I met a jogger on a lonely run,
Who said— while two metres from me – “people
stroll in the local parks… Near them, in the sun,
Half asleep a couple lies, whose love,
And lack of care, and sneer of selfishness,
Tell of their heedless concern for the rules.
They may yet survive, but might cause lifeless others,
They mock the hands that help them, these fools
And in the history books, these words could appear:
‘My name is not important, my words more so;
Look on society and despair!’
Only lessons remain. Stop the decay
Protect the NHS, care for its kin
Or the future will rue our today.”
Today would have been my first day back at work after the holiday, the holiday that for many reasons, mostly health but not financial, fortunately didn't happen. It's also the holiday I am mourning as it had been part of my life for almost two years; we'd been planning it ever since we went to Costa Rica to visit my family last time. It's difficult not to think about where we’d have been
each day if the holiday had gone ahead, but everyone was thinking the same,
what would they have been doing if the restrictions weren’t in place. Plus, even if the borders weren't closed the day before we were due to leave, the holiday would have been so different, spent in lockdown with restaurants shut, places closed and beaches forbidden, but at least we would have been together.
Starling on Ditton Meadows
I have been reminded of it constantly, by us undoing all the bookings, trying to get our money back, in the big pile of things we were going to take out with us, in my niece's recent birthday celebrated virtually rather than in person. It's also in the small things, every time I look at my medications, contact lenses and toiletries I had stockpiled to make sure I had enough, all fortunate now, as well as the haircut I had just before we were due to fly. All have come in useful now we're in lockdown.
Blossom on our Bramley apple tree in our back garden
However I'm owning this grief and the world is grieving due to tragic bereavement, but also the loss of not being to spend birthdays, weddings, anniversaries, Mother's Day and Easter together, the loss of being able to do what we want, when we want. My grief just happens to be more specific, which actually helps having something to focus it on. The holiday grief I'm experiencing is mostly though in the loss of having something to look forward to. Now everything is uncertain. I'm uncertain when I will see my family again in person, when I can hand over the stack of presents, but also when all this is going to end. Everyone's in the same boat I know, but that knowledge doesn't help.
A heron hunting on the River Cam
So in the interest of having something to look forward to, I have made plans to commemorate the things that will no longer happen, it will give the grief some closure. For Easter, I rewatched the film Peter Rabbit as we cannot see the sequel yet now. For my birthday, I won't watch Black Widow in the cinema now, instead I will rent the recent film of Emma and watch it at home. When Eurovision, the Wimbledon final, the Olympics and Glastonbury (not that I got tickets) were supposed to happen, I will watch programmes to celebrate them; I have the 2012 London Olympics DVD and I'll watch the triumphant opening ceremony again, our last great national event. I also have the 2008 Wimbledon final between Roger Federer and Rafael Nadal on DVD, so I'll watch that too; I can't say rewatch as I missed some of it; I was on holiday and we had to go out for dinner, but the match was still going, so we went to the restaurant and they kindly let me eat while watching it in the bar: as I remember it my family joined me for the end of the match with their desserts.
The bluebells we planted
My anxiety disorder thrives on uncertainty, so I need things to look forward, to hang onto, so all this will help for now, it takes me to July at least. I am also writing notes for a blog post about my experiences of this time living with an anxiety disorder, but in the past tense, which gives me hope. On a day-to-day basis, I have my daily nature/Pokemon/exercise walk, my beautiful back garden with its blossoming apple trees and numerous birds, and my birthday bluebells, if we can keep them alive that long! Because this will end, it's the not knowing that's the hardest part. All the photos in this post were taken by me over the Easter bank holiday weekend.
"Smell is the most powerful trigger to the memory there is. A certain flower, or a, a whiff of smoke can bring up experiences long forgotten. Books smell musty and, and, and rich. The knowledge gained from a computer is a... it, uh, it has no... no texture, no, no context. It's, it's there and then it's gone. If it's to last, then, then the getting of knowledge should be, uh, tangible, it should be, um, smelly." Rupert Giles, Buffy the Vampire Slayer.