Feeling the weight

I've written about hard subjects before, just take a look at my previous posts about anxiety, panic attacks and the EU referendum! But this is one of the hardest, maybe the hardest, at least for me. It may not seem that way when you read it, but this is a blog post I never thought I would have to write, about a subject I never thought would affect me. But affect me it has and it has hit me hard. I'm annoyed at myself because it feels like it's mostly my fault.

How thin do I look? I can't have been healthy!

I am close to being overweight, almost 11 stone, when for most of my adult life, I've been around 9 stone. Now I don't want to go back to that weight as I think it was unhealthy. However I reckon I have put on a stone and a half over the past year or so, I feel unhealthy with it and I should lose that. Luckily I can fit into most of my clothes still because I wear leggings, but I can't wear my jeans anymore. If I carry on like this, I'll have to go up a dress size. I have no excuse, but I have reasons. To try and make sense of why this has happened, to come to terms with it and hopefully do something about it, I'm writing this blog post.

I will have to go back to my childhood to explain. I was never interested in bad food: fast food, burgers, takeaways. I prefer simple food, simple ingredients, unadulterated meals. I'd choose a salad over a McDonalds. I don't like sauces, not even ketchup on my chips. I'm more interested in fruit and veg than sweets and cake. In fact, the first time I was off school sick, it was because I ate too much fruit! Even now, I can't walk past a fruit bowl without being tempted. When I was a teenager, people used to joke I was anorexic and I took it as a compliment. They'd pick me up, exclaiming how light I was. I was proud of it! But I never courted it. I just wasn't interested in food, never was. I'm still not really interested. I eat to live.

I love fruit, all fruit, even exotic fruit like snakefruit (right)

Things changed when I turned sixteen when my anxiety hit and I started having panic attacks. My life spiralled out of control. I went from having little appetite to having none at all. I still don't really have an appetite as such. I developed an eating disorder where I found it difficult to eat. It was both a symptom and a way of coping with my mental health problems, trying to control something when I couldn't control anything else. I stopped eating altogether at one point because it was easier than fighting through what I called the upchuck reflex. My friends had to forcefeed me when I started shaking uncontrollably. Since then, I haven't had a normal relationship with food, not liking eating in public for instance. My appetite, what there is of it, is the first thing to go when I'm ill, mentally or physically. When I can't eat fruit, I know it's serious. It's become a canary in a coal mine for me.

Now I have a handle on my anxiety, which used to sap my appetite, I have to deal with one. I must have had one before my anxiety hit, but that was more than 20 years ago and I don't remember. So when people learn to manage their appetite from childhood to adulthood naturally, I've had to deal with it all at once, which has been a bit much.

This is me under there!

However, apart from sugar cravings during that time of the month, I've been managing pretty well. That's why putting on so much weight is a surprise to me. It started before lockdown, before I knew I had endometriosis, which makes me bloat. My weight shot up on medication for my balance problem, but it went back down when I stopped taking it. That was the first time I went over 10 stone. I'm now on medication for the endometriosis and putting on weight is a side effect, but not to this extent and I'd prefer to take the tablets as the benefits outweight the weight gain. They've stopped the sugar cravings for one!

Due to my balance problem, I don't sleep well; I often wake up in the night and I sleep very shallowly, so anything can wake me. Sleep problems can make you put on weight, or more prone to putting on weight.

Me asleep(ish)

I'm not a great one for exercise and with lockdown, I'm currently only going in to work once a week; my cycle commute is my only real exercise, which was enough before, but it seems no longer. I will have to start exercising properly, which will be hard and I'll have to be careful what sort of exercise I do because of my balance problem. I definitely need to improve my cardiovascular health. The other thing is when I exercise. It takes me an hour to even get moving every morning; to say I'm not a morning person is an understatement. Vertigo upon waking due to my balance problem makes me groggy, so exercising before work is out. I'm knackered after a day working and exercise will knacker me further, for the usual reasons, but also my balance problem makes most physical things tiring. So I'm going to start at weekends and see how I go.

When I could fit in a dress like this

I don't eat unhealthily, but I do rely on ready meals and frozen meals at least once a week. The weird thing is, I eat the same thing as my brother; he has larger portions and eats more chocolate bars than me, but exercises less than me; even on our lunchtimes walks, he dawdles, whereas I try to keep the pace up; and his weight has barely changed.

Stress can do weird things to the body, to the hormones and goodness knows we've had enough stress lately. But I thought I was coping with 2020 okay, surprisingly well given my history of anxiety, including all the mental whiplash when things kept changing and first I was going to go in to work 2-3 days a week, then 4 days, and now one day a week. I had a few wobbles in the beginning, but maybe underneath I'm not coping so well.

One of my favourite photos of me, with my nephew Thomas

So between my endometriosis, balance problem and anxiety, which all cause the insomnia, that may be the reason behind my weight gain. This means it's not as much my fault as I thought. But the biggest cause is probably my age. I noticed a difference in my metabolism when I entered my 30s. I guess I can't eat what I'm used to eating without consequences anymore. So even though I haven't changed my diet any over the last few years, maybe even being a little healthier, I'm going to have to now. However with my history of an eating disorder, caused by the need for control, I'm going to have to be careful. I'm cutting sweet things out of my diet, which is no hardship, it's been easy over the last few days. I mostly eat them when I'm bored or watching TV. But I'm going to miss my Mum's flapjacks and scones. Then I'm going to build up to fewer carbs like bread (which I adore), pasta and rice. But I know it's bad to cut out food groups altogether, so everything in moderation. I will try to eat more vegetarian meals as well, I tend to choose them off the menu anyway. So all signs point to the fact that changing my diet should be relatively painless.

Turning 30

The first step has been getting over myself, stopping feeling sorry for myself and thinking this is temporary. I'm going to have to do all this as the trend in my weight has been steadily increasing; it's only going to go one way and will continue that way unless I do something. I have to lose the identity of my younger self who could eat anything and stay thin. I should also eat more slowly: due to my eating disorder, I ate fast to beat the upchuck reflex, otherwise I would have ended up eating nothing. That habit has stuck and I don't need it anymore.

I'm going to have to strike a fine balance between the problems exercising with a balance problem and changing my diet with an anxiety issue, but I'm up to the task. I'm the little girl who stopped biting my nails because I hated the way they looked, just like that. I decided to stop, so I did. I'm the teenager who stopped drinking alcohol because I knew I was drinking to drown my anxiety, so after my third hangover, I stopped. I now only drink on special occasions like celebrations and then only a few sips to be social. I got over a breakdown and am managing my anxiety. I've dealt with two chronic illness diagnoses and live with the symptoms daily. I can beat this too. All I need is an incentive like I've had before and one look in the mirror at the body I don't recognise anymore and one walk upstairs which makes me out of breath, that's enough incentive to be getting on with.

The most body confident I've been, taken by Dave Amann

Back to Normality?

This blog post has been many months in the making, so warning, it is rather long. It's worth a browse at least, especially with wonderful videos from Travis and of The Princess Bride, and a few pretty photos taken by me. So far, so normal for me and my blog posts. I initially called this post Back to Normality, but I added the question mark as I don't think anything will ever be truly normal again. It's not the 'world is coming to an end' apocalyptic anxiety-fueled feeling I had at the beginning of lockdown, but a more realistic view that attitudes will have changed forever because of what we've been through. I'm faced with some normality in going back to work next week and I'm both fearing and relishing the prospect. I have been back, briefly, once for some filming and it was surreal, but nice. My body didn't like it though as I got all sorts of aches and pains, including in my wrist, pelvis and butt. I blamed the bicycle at first of course! When you cycle twice a day, 5 days a week, for 7 miles every day, your body gets used it. It has definitely regressed these past 6 months. 6 months! Otherwise, I've been working all through lockdown from home, which I've never wanted to do, mainly because I knew I would enjoy it. I have social anxiety and I'm practically a hermit as it is, only seeing close family on a regular basis. So work interaction is the only thing that stops me from not having a social life altogether and I'm afraid of how much I've regressed in that sense too. But being at work will build that back up with no pressure. 

Screenshot of the filming

Filming at MMLL

Anxiety has been preparing me for the worst for 20 years, with what ifs and thought spirals, so the pandemic hasn't hit me as hard as others in some ways. However concerns about how the virus would impact me, my family and loved ones have caused a lot of anxiety and one of the things that has helped is living in the moment, escapism and writing this blog post. I've been dipping into it every once in a while over the lockdown period and writing it as if lockdown had ended worked. Lockdown has been relatively easy for me, with no one close to me catching it, no one losing their job and no one being furloughed. It has actually limited my anxiety and I'm worried how much it's going to come back when I return to the world properly. But with everything uncertain about whether there will be another lockdown and a resurgence of the virus, I know the anxiety will always be with me. Uncertainty over the return caused some weird anxiety dreams that left me unsettled, but they disappeared once I knew what was happening. Now though, with the increased restrictions and the threat of a second wave just as term starts and I'm going back in to work, I'm not sleeping as well. Last night, I tried all my usual methods of getting back to sleep; I usually wake once in the night between 2-4am, but go straight back to sleep. I resorted to an unorthodox method of doing a puzzle from the puzzle book I keep by the side of my bed, which I dip into every now and again if I'm feeling jittery and it calms the spiralling thoughts in my head down, probably by focusing my mind. I had so many at 2am this morning and the puzzle worked. I'm glad my anxiety disorder is manifesting in tears and dreams and disrupted sleep rather than panic attacks. At this rate, I may have to break into my magic painting book; I loved them as a child and it's a great productive, mindful nostalgia hit.

Forget colouring books!

Lockdown for me started in quite a dramatic fashion. I was due to go on holiday to Costa Rica, where my oldest brother and his family live at the moment, the Wednesday before lockdown. We were determined to still go on holiday as there were no restrictions then, despite the fears of catching the virus in the airport and on the plane. But the day before we were due to leave, the border closed. Our flight still went ahead for repatriation purposes, so we initially received no refund, even though it was effectively cancelled for us; apparently we could still have got on the plane, but we couldn’t get off it. Thousands of pounds just for two 11 hour flights and no holiday? We then got a voucher which would have locked up the money until hopefully the world got back to normal, or we could at least fly again, but it was only valid for 12 months… Finally, after a battle involving numerous telephone calls and emails, with the airline admitting a mistake and a very helpful customer service person working from home on our side, we got our money back. We got all our money back from the holiday in the end from car hire to accommodation, but it took months. We were incredibly lucky as many people are still waiting for their money, especially from BA.

A hummingbird in Costa Rica

After that and still to this day, it's been difficult not to think about where we’d have been if the holiday had gone ahead and if we'll ever get back there. But everyone has been thinking the same, what would they have been doing if the restrictions weren’t in place, plus the holiday would have been so different with restaurants shut, places closed and beaches forbidden. The border has only just starting opening there again, unlike here where it never really closed. There is a comfort in that we're all in this together. The heartbreak for me is that the holiday had been two years in the planning and it was difficult to undo all the preparations. We were visiting family and we have piles of stuff we were going to take out to them that they couldn’t get out there, plus presents as we didn’t see them for Christmas or birthdays. I had last-minute appointments at the dentist's and with my doctor, I got my medication early, stockpiled contact lenses as I wouldn’t have had enough, renewed my passport early, bought new clothes, wore clothes I didn’t want to take on holiday, got a haircut, bought toiletries to make sure I had enough, made packing lists and all were totally unnecessary and were constant reminders of what was not to be. However they came in useful when the country went into lockdown, closing dentists so my tooth pain would have caused me anxiety all through lockdown, hairdressers, making things more scarce in shops and every time you stepped into a shop or doctor's you were at risk, we still are.

A Costa Rican sloth

When I knew the holiday wasn't going ahead, I still had to go to work, but when I found my bike had a puncture and our attempts of fixing it took too long, I phoned work and they told me not to come in as I was on half day anyway, taken so I could pack and prepare for the holiday. That's when I broke down in tears, which were good because it meant I wasn't having a panic attack! All the usual anxiety about going on holiday and flying on a plane, plus the anxiety over the virus came to a head; it was a cathartic release. I called my parents as I was afraid I wasn't going to see them again for weeks, maybe months. This made me cry harder. I had the day off sick, used the rest of the week as leave to sort things out, trying to cancel our holiday and then I started to work from home with everyone else on the Monday.

It took a while to settle, nights were the worst, they always are with my anxiety. I went to bed early each night to stave off the panic; it's better to wake up early with it, than have it interfere with my sleep. That said, I had no real panic attacks, just anxiety attacks and randomly my temperature shot up in the evening, which didn't help as we had no thermometer, all sold out, so I couldn't check if it was a Covid fever or not. I reckon it was anxiety or my endometriosis. In the end, we bought a baby kit just to get a thermometer. Luckily, one of my managers had given me some hand sanitiser before lockdown for our travels, so we had enough of that. After a period of not being able to eat very much, I improved after I realised I’d have to move in with my parents if I didn't get better so they could look after me, like they looked after me after my breakdown in 2013. My fears of passing the virus on to them actually helped me get my act together.

I couldn't have made it through this alone:
me and my brother in Costa Rica

At first, I avoided all news, getting my brother to tell me anything I needed to know; each time I caught something on the news or on an app, I could feel my anxiety rising. He has been a rock during this whole time, generally unflappable, and he worked from home for about 3 years, so he's an old hand at it. As I adjusted to the 'new normal', I felt strong enough to read or listen to the news myself and it became a regular lunchtime tradition watching Nicola Sturgeon's daily briefing; she was much more reassuring, assured and compassionate than the PM. Other things that helped get me through were Orkney Library's jigsaws, Only Connect style walls and webcams; I got my fix of the outside and more global world from zoo cams, the Salisbury cathedral peregrine falcon webcam, the Tresco island live cameras of the beach and gardens, as well as Arenal volcano in Costa Rica. We checked in with my parents every day to ease my mind and theirs after dinner, swapping news, sharing photos and doing quizzes and puzzles; I send them the Times polygon every day.

Early on, I got a weird cough that I couldn’t cough that sat on the top of my chest that meant I couldn’t breathe as easily. This was not good as it mimics anxiety attack symptoms, but it was not as bad as it could have been because it also means I’m used to living with these symptoms. Knowing that every cough, either my own, from someone close to me, or a stranger created paranoia, we kept in the house, but as it didn't fit the symptoms and we had no others, when it went away after a few days, with my brother having it after me, we didn't isolate.

The coaster on my desk, John Ruskin

If I was furloughed, I don't think I would have coped, or gone into a film and TV induced escapist coma. Luckily, I could work from home, but only after some computer woes, working on my brother's laptop while we sorted out a PC for me; my PC is Windows 7, so that was automatically out. Luckily, I was given a free Windows 10 PC when I was at Homerton. I tried to stick to my usual hours for familiarity's sake. Creating a routine was crucial; routines are a boon for anyone with anxiety. That said, I tried not to replicate my old routine at home as it would have been a mental health crutch. I used it as an opportunity to be more flexible, as much as you can be with restrictions in place, such as having different things for lunch rather than my usual sandwich. I still woke up at 6.30am every day despite not setting my alarm anymore, though that is when the heating comes on and the boiler is in my room, but it continued over the Summer too. I didn't do much with my extra hour in bed, I needed it to read the news and wake up properly, as without my morning commute to wake me up, it was difficult to get my brain cells moving in the mornings. Separation between work and home was also less easy. I wore comfortable clothes and no make-up, contact lenses or jewellery. When I had to switch between working for one library and the other, I would use my lunchtime to switch mindsets or have a quick break. I used my dressing gown as a way of telling my body I’ve finished work and watched an episode of something between work and having our dinner as a stop-gap. Creating a distinction between the weekend and weekdays, was not just getting up later and no work, I tried to do different tasks each day, but despite my best efforts, sometimes the days blurred.

I kept my same core hours of work, allowing myself more flexiblity in the mornings if I woke up feeling bad. Drinking enough was key, I was so used to drinking from my water bottle all day: instead of a litre water bottle on my desk, I had a small glass which forced me to get up regularly. Getting outside at least once a day helped me feel like I could breathe deeply, shallow breathing was common for me during those first few weeks, even if it was just the back garden: nature is the best soother. My home desk is next to the patio doors to the garden, so I had a lovely lookout and often watched the birds and next door's cats; after one cat downed a pigeon (it went to the vet and was never seen again), we convinced her to put bells on their collars. All was good after that. I did some gardening every day, usually picking up fallen apples and dead-heading roses, which is very satisfying and makes them last longer, we still have some growing even now! We also loved seeing our wild flowers and vegetables growing; our courgettes have been a great success.

Our rose bower

My brother and I developed a lunchtime routine, coordinating our lunch breaks so we could eat together, as far as meetings and workload allowed, and then going for a walk, our one allowed outing a day during the restricted times and sticking to it when restrictions eased. Pokemon Go gave us the impetus to explore our local area and we now have some lovely nature walks across fields and meadows. We saw Spring change into Summer and now Autumn. I miss the quiet roads and empty pavements, now I'm having to adjust to traffic noise again. Each trip out to the shops was atrocious, my anxiety rose and my vestibular system got knocked out. One time, I sat in the car while my brother loaded the shopping, staving off a panic attack. But I knew if I said anything, my parents would insist on doing their own shopping and worries about their health spurred me on. Sometimes we have felt like the parents when they have sneaked out to the shops instead of asking us to. We have considered grounding them! They are in the at risk category due to their age and health conditions, but not in the shielded category. They are definitely taking the pandemic less seriously than their children. Now, shopping trips are mildly aggravating, but I can't wear a mask. I wrote a blog post all about why.

A good thing happened during lockdown; I got so annoyed at the quizzes my brother's workplace was sending round, taken from The Sun or the Daily Mail, that I created my own for them. I themed each week, starting with IT as that's the field they work in, doing three quizzes of 30 questions a week, starting with a word round like anagrams, a general knowledge/trivia quiz and then a picture round each Friday. They loved it so much we were sent a box of chocolates, funded by their HR. But comments I received meant more, especially the one who said it was the only thing that got him through the day: that was early on in lockdown. This then lead to a few of the quizzes being sent round to my work colleagues as well. My favourite was my lockdown landmarks picture quiz, with photos of empty tourist sites around the world. This week is my last week as I won't be able to continue now I'm returning to my workplace, so I'm ending on a high with a music round: name the song from its intro.

My birthday cake

Regarding work, my colleagues have been brilliant, in both libraries in different ways, even sending me a birthday cake! In one library, we had a virtual team meeting every day and had lively discussions on Yammer and Teams, the other library was more hands off with meetings twice a week, which were less about work and more about socialising and checking in with each other. These meetings became fewer as we got into the Summer. There were social meetings for all librarians in our area, so I got to see different faces. I also had rants with my ex-colleagues over Facebook Messenger, mostly about their workplaces and world politics. I found Zoom and Teams meetings quite draining, especially with the larger numbers: one time there were 200 of us! It's when you feel everyone is looking at you, luckily most people turned their cameras off, it was only for the smaller meetings we could see each other. Plus, I find it stressful seeing myself. So I tried to take time out, do things away from the screen when I wasn't working, even if I did one chore a day, it was something. I also took holidays, two weeks at home watching the tennis and trying to be productive, and a recent holiday away to a cottage in the middle of a tiny village. I marked the cancelled events, watching the 2008 Wimbledon final between Nadal and Federer during Wimbledon fortnight, the Glastonbury programmes and the 2012 Olympics opening ceremony when that should have been on, which was the epitome of bittersweet as it made me proud all over again, but I also cried to see how much the word has changed with the referendum and such. Instead of all the video calls, virtual meetings and messaging, the best thing for my social side was embedding myself in the communal aspect of working remotely, mainly joint ventures such as; helping the ebooks team with requests and purchasing, which is still ongoing with my buying ebooks for other libraries, maintaining my knowledge and working in an area I have been involved in for years; deduplication of catalogue records, which has helped me improve my cataloguing skills; and most recently creating an introductory video to our libraries, teaching myself how to use new software. Learning new skills in such challenging times has been a real boon and showed me that I can do more than I realise.

Winnie the Pooh quote

I have tried to be kind to myself, not question or judge myself, just doing what I have to in order to get through. Everyone had grand plans of what they could do with the extra time on their hands. Me, I thought I could start putting together my book idea, but I found it hard even to read books at first, let alone write one. I was going to make good use of the last week before going back in to work, making porridge for breakfast instead of just having one of my Mum's flapjacks and a banana, but that didn't happen. Saying that though, I did listen to more music and took notice of all the things I've been grateful for working from home. Putting on a stone would normally get me down, but I know I will lose weight once I start cycling to work again. If it was watching children's programmes, reading chicklit or binge-watching television, whatever worked. Familiar shows like The Repair Shop, Merlin and my favourite ever TV series Alias, (which is now on Amazon Prime) have really helped. I'm very pleased The Great British Bake Off and Ghosts are back and the new All Creatures Great and Small is very welcome. Another great thing was the lockdown version of The Princess Bride, it was on Quibi, but you can find a taster on YouTube below. I didn't need music as much as I thought, I can't listen to it and work at the same time as I used to, only when doing tasks that don't require much brain power. But when I worked at the police station inputting data, I used to work with music playing all the time. When I played the playlist I made of music from that time, including Ruby by the Kaiser Chiefs, How to Save a Life by Razorlight and Standing in the Way of Control by The Gossip, it reminded me of a time when I was stronger than I ever thought I could be, which was confidence boosting. It also helped to block out the kids playing in the garden next door, while also tapping into happy memories of when life was easier, fooling your brain for a while.

It was okay to let things slide; there’s no need to dress up or wear a bra, put in contact lenses, put on make-up or even wash your hair as regularly, unless you feel you need the mental boost or it’s good for the motivation. I did do more if I was video conferencing though; you have to be more aware of what’s on camera and I made sure what I wore was what I wanted people to see!

Compassion for others was something I let slide for a while, it usually comes naturally to me as I'm a highly sensitive empath and take on the feelings of others, but when I'm in anxiety mode, that disappears. Our neighbours, who flouted lockdown rules, having people from other households over, going out whenever they wanted and even hosting a birthday party in their back garden with many people round, were the subject of many rants. My poor brother also got nagged more than normal as minor irritations became major. Happily, that has improved, though I still nag my brother!

Finally, the essential thing that got me through lockdown, was owning any feelings I had:

1. Grief over lost holidays, missed celebrations and not seeing loved ones
2. Denial was necessary to be able to process everything, escapism through TV and films
3. Sadness that life has changed so much
4. Anger about how the situation unfolded and was handled
5. Bargaining, being flexible within the restrictions
6. Acceptance came as everyone adjusted to the new normal

Pride was the overarching feeling when I look back on it all; not just pride of the NHS, which moved me to tears on numerous occasions, with my very English polite clapping on a Thursday turning to saucepan banging; pride of key workers of which my sister-in-law is one as deputy head of a school; pride of friends and family and how they adjusted to it all; pride of my colleagues and how they carried on regardless; pride of my library community and all the services they have set up, how they have not just muddled through, but adapted; and pride of the University in which I work, world-leading in so many ways, but generous, compassionate and caring throughout, making sure the welfare of everyone is paramount, both mental and physical. There's also pride in myself, not letting my mental health degenerate of course, but also how I've coped with work, learning new skills, making new connections and letting things slide at times, because I have a tendency to say yes when I shouldn't. As a side note, with the lessons learned over the past 6 months, appreciating what you have and those around you more, getting back to nature, slowing down, there have been some professional lessons too: ebook provision coming to the forefront, better relationships and collaboration with faculty over reading lists, working together more with other libraries, accessibility for everyone, disabled or otherwise, being key, and putting mental health first, all of which I have been involved with for years and have been trying to improve. They've all happened at once! I hope the world has changed forever in these regards, and with uncertainty everywhere, we are going to need our families, friends and colleagues now more than ever. I look forward to the day I can hug my Mum again and get a bear hug from my Dad; my brother isn't the most tactile of people, so I haven't had a hug from anyone since March. I may have to stealth hug him if I get desperate!

Finally, on a niche note, I am proud of my favourite band Travis for all they've done to reach their fans during lockdown, including releasing several singles, acoustic versions of their new and older songs and an awesome video of their hit "A Ghost" which the lead singer Fran Healy drew himself and their latest "All Fall Down", showcasing Fran's artistic skills. I see it as a lullaby for adults.

To mask or not to mask

I have always been a law-abiding citizen and technically I still am. So why do I feel guilty? Because I didn't wear a mask in a shop. No one questioned me or even gave me a sideways look, though I felt very self-conscious and paranoid that everyone was glaring at me. Luckily, the supermarket where we do our weekly shop is Sainsbury's and they aren't enforcing the regulations unlike other shops. I want to thank them for not even confronting me for not wearing a mask, as it did cause me anxiety not to wear a mask and it would have made it worse being questioned. Just in case, I downloaded an exemption notice from the government website, planned a speech and rehearsed conversations I might have if asked: it's a symptom of social anxiety, I rehearse phone conversations routinely. I have anxiety enough not wearing one, believe me. But to wear a mask would have been far worse anxiety-wise; in the government's exemption terminology, it would have caused me severe distress. There were others who were unmasked, but they may have had a legitimate reason for being exempt like me. I just hope people don't abuse their compassion. It didn't help that I have been comparing people who do not wear a mask when they should to anti-vaxxers. It's the same principle; you are protecting others by wearing a mask and those who don't are relying on those that do to stay healthy.

Exemption notice

I will wear a mask if I'm nipping in and out of a shop or if it's a small place and I won't be spending much time there, but for larger places, I can't wear a mask. It's not that I don't want to, I really wish I could. It's that I fear what will happen if I do. When the announcement was made, an announcement I was dreading, I tried a mask out, when I picked up my prescription from the pharmacy and on a short car journey. Each was in a very controlled environment, but I felt claustrophobic, as if I couldn't breathe in properly, which is a major problem for someone with anxiety. It's one of the more minor symptoms of my anxiety disorder, usually, but I don't like feeling constricted; I don't like wearing scarves, I don't wear polonecks and when I feel anxious, I have to take off anything that makes me feel my breathing is being restricted, from jewellery to underwear. I never thought it would be an issue, but in these times, it has become one. I hate scenes in TV programmes and films where someone has to take their clothes off when they're having a panic attack, the classic is when they're stuck in a lift, but it is based on fact. So if I have that reaction to things around my neck, imagine how something over my mouth and nose makes me feel. I know masks have no effect on breathing, but anxiety cannot be reasoned with. For some people, masks are uncomfortable, for me, it can induce a panic attack.

I go out to one shop once a week to buy our groceries from the supermarket. I drive and my brother comes too to do our parents' weekly shop. We take 45 minutes or so to do the shopping, it's too much time for me to wear a mask. A few times during lockdown, I have been close to a panic attack due to anxiety about being around other people, fear of catching the virus yes, but not only due to my mental health, but also my physical health. I have a vestibular disorder which means my senses can get overwhelmed by seemingly innocuous factors and supermarkets exacerbate that: the neon lights, the rows of stacked shelves, other people moving about.

I was on the verge of a panic attack once, so much I feared I wasn't able to drive, this would have meant our shopping and our parents' shopping would be ruined. I took a deep breath before turning the engine on and then again when we got home. I know if my parents knew I felt this way, they would instantly say that they will do their own shopping from now on, but I am not prepared to put them at risk; they would be at greater risk as most people do not social distance once they are going round the shop, just queueing outside and at the tills.

This almost panic attack was before we had to wear masks. People will tell me to try wearing a mask and see how I go, find one I feel comfortable with. I have tried and not one makes me feel anything less than I cannot breathe properly and any symptom of a panic attack can bring on a panic attack with me, even increased heart rate from exercise or excitement. So the longer I have to wear one, the worse I feel and the more likely a panic attack will happen and the more I have to do while wearing one, the worse it is for me. With the added overwhelming of the senses, brain processing I have to do in the supermarket and the risk factor of having to drive afterwards, it is too much for me to wear a mask. You can put cool images on them and it will make me feel no different, even the one with Gandalf wearing a mask saying "you shall not pass" to the virus.

The Gandalf coronavirus face mask, available from Etsy among other places

Once I stop working from home, I don't know what will happen, but my workplace is investigating visors instead of masks, so I'm hopeful. I wish I could wear a mask, I really do. I believe in masks, I believe we should have been wearing them long before. I want to protect others by wearing one, but I cannot do so without severely affecting my mental health and during this time, I have had to protect it and will continue to have to for many months and maybe years to come. People with mental health conditions walk a tightrope, they know that one slip could send them on a downward spiral, and those are very hard to recover from. Even if I'm okay one time, it doesn't mean I will be the next. Mental health can be unpredictable like that. I have to be selfish here, but I have a legitimate reason to be, those who don't, please wear a mask.

The Framework Five - Critical Assessment

Summary
Critical assessment takes into account the origin, context and suitability of the information being studied, how it is influenced by not only the creator, but everyone involved in handling and disseminating it. These factors determine the authority and therefore credibility of the source of information, the most important assessment.

Personal
There are some very timely examples of critically assessing information I could use as my example: politics such as "he who I don't like to name" (could be one of two people in power to be honest) and Brexit; healthcare with the coronavirus; science with climate change. However all those are depressing and can be downright scary, especially now it seems the whole world has changed. I prefer not to dwell on them too long and the world of misinformation is massive and complex when it comes to these subjects, so this post would be very long otherwise.

I could be very British and talk about the weather, specifically weather apps as they seem to vary wildly, particularly about whether it will rain. But I'm going to get personal, hopefully not too personal. I have three chronic health conditions, meaning I have to live with them as they are not going to go away: anxiety, a vestibular problem and endometriosis. For two of which, I've had to fight the system for treatment and if I hadn't done my own research, I may not have been diagnosed in the first place. So it's something I feel I can talk about with some passion and authority, something I've proved myself in being adept at critically assessing information, but it wasn't always the way. Doctors can easily dismiss things you've looked up on the internet and don't like self-diagnosis, at least in my experience. When it comes to your health, you know when something is wrong; you know yourself, your body and your symptoms best. So you have to become an expert very quickly and advocate for yourself.

Without going into too much detail, my endometriosis has an "unusual presentation of symptoms" and vestibular conditions are hard to diagnose; you tend to get given the easiest answer and told there's nothing they can do. I have explained my vestibular journey in more detail on my blog before: Bittersweet Victory. Just click on the anxiety tag to see my numerous posts about anxiety, but this one is a good place to start: My Past, Present and Future. The endometriosis is a new thing, even though I've probably been living with it for many years, so I haven't written much about it yet.

Trust me, I'm a doctor

In the beginning, I thought healthcare professionals knew best and deferred to them. I didn't ask enough questions, or the right questions, assuming what they were telling me was correct. I always have a problem with figures of authority, quailing in front of them. I should have critically assessed the situation, their situation. I should have taken into account the little time they had, the fact they weren't a specialist in the field and whether they were doing the right tests to critically assess my symptoms to prove their assertions.

When I spoke to a specialist, they said what the previous doctor had told me was wrong. I was sent back and forth, given different diagnoses. When they gave me another diagnosis and told me there was nothing they could do, I researched it and discovered it didn't fit as there was one essential symptom I was missing, cross-checked it on numerous websites, some very academic full of sciencey terms I didn't understand. I looked them up and learned the lingo so I could speak their language when I saw them next to show them I'm serious: I am a mix of stubbornness and curiosity at the best of times and it stood me in good stead. I got a test done off my own back, returned with the results and with irrefutable evidence, they couldn't ignore me. I had to push for treatment and when I found the right person, the person who was willing to listen and didn't just dismiss me, I asked all the questions. I asked what tests they were doing and why, got them to explain the results.

When it came to the second diagnosis of endometriosis, I visited practically every department of the hospital so they could rule everything else out first. I didn't accept what they told me each time, knowing everyone is fallible, even doctors, and pushed for more, knowing what they were saying wasn't right. I critically assessed every person I spoke to, ensuring they had the authority to back up what they were telling me. I quietly defied them and did my research afterwards. They didn't listen to me, so I let them go through the motions, doubting myself. I held my ground, more in desperation than anything else. When they ultimately came up with nothing, that's when they listened to me, they were finally in the right place to listen. I came with a carefully rehearsed speech and proof from an authoritative website. I was proved right and it goes to show, sometimes the authority comes from you and not external sources.

My critical assessment during these medical journeys each took years, comprising the critical assessment of the doctors and specialists themselves, their job titles, specialisms and whether this was just their opinion or they had information to back it up from tests and other sources. I then did my own research, using books, websites and yes, blogs. Blog posts were especially useful for other people's experiences and other avenues to research, some even had links to read and advice. Finally, which leads me to my professional example, I joined a Facebook group for support and shared experience for better understanding of what living with the condition is like.

Capt. Benjamin Sisko (Avery Brooks)
from Star Trek: Deep Space Nine

Professional
In comparison, my professional example will seem downright boring and far less dramatic. It can be fun though as it's about social media. Social media is all about people and individual accounts, on Facebook, Twitter or whichever platform you're using. You can use hashtags and lists all you like, but it still comes down to the individual account. Twitter in particular becomes unwieldy very quickly the more accounts you follow. So now I use Hootsuite (other social media managers are available) to manage it better, and I've created Twitter lists on topics. I can separate social media accounts into three categories: macro, micro and mono.

First there is the macro, an account that covers a lot of people, or sites, such as the UL Twitter account; it may be one library, but it is vast and covers a wide range of collections, not to mention people. Then there is the micro account, one library such as the MMLL Instagram account or Classics library Twitter account. Finally, there is the mono account, one single channel, for one single person, such as my own Twitter account. So you have to take into account who they are representing, the context they are based in and who may be behind the account.

I have curated these streams and lists myself, populating them with people and places I know in real life, so I have critically assessed them in person and know what they are an authority on. Others I know by reputation, such as Orkney Library and know they have built up authority through other's opinions. Lastly, there are the recommended accounts, those accounts I have been referred to by people I trust.

Social media is a great source of information, but you have to know where it's coming from. So even the accounts I have critically assessed and deemed good, I still assess the information they provide. I don't take much notice of retweets unless they have made a comment. Tweets with links and images I can be easily swayed by, especially those with a suitable gif or meme; it makes their tweet or post seem more credible.

The Credible Hulk

Critical assessment is key in social media as there is a lot of misinformation out there, but also it can be a great big echo chamber where you only see the information that follows your cognitive biases, that agrees with you, in more ways than one. So don't surround yourself with people like you, curate your sources wisely.

Themes
Again, my information sources are centred around people: information from doctors and healthcare professionals, and information from individual social media accounts. I assess them by their job, professional knowledge of them and whether I have met them in real life. I feel more confident critically assessing information professionally as there are processes and policies to follow, known authoritative sources and places to use, as well as people to ask. You feel on surer ground.

My undoing

This is the hardest post I've ever had to write. I started it, but couldn't finish it. I've been emotional for more than two weeks. The reason? I left my job of 10 years. I’ve been drawing it out with a couple of secondments to different places in the University, but this time, it’s for good! It's so long and thanks for all the fish (I don't like fish).

Think this was during one of the conferences we held in the building. Photo credit: conference photographer

Being at Cambridge Judge Business School (CJBS) for so many years, seeing so many people leave and so many arrive, I never really believed there would come a time when it would be me saying goodbye. It’s a sign that I have been so happy, but it's also a massive change. However an opportunity that was too good to pass up came my way: a job in not just one, but two libraries I’ve always wanted to work for, have skills in and a fascination for the subject: Classics and Languages.

Dressed up to the 80s for the first work Christmas party, in my favourite colour

2009 seems such a long time ago, but trying to organise a team in my first week on the job for the 800th anniversary of the University of Cambridge celebratory University Challenge inter-department quiz seems like yesterday; our team lost in the first round to the Anglo Saxon Norse and Celtic department, but by a very close margin.

One of the many random things I had to do while at CJBS

So much has happened in the decade I've been working for CJBS, not least doing my second degree to become a certified librarian, two secondments to the Engineering and Homerton College libraries, being published in a professional publication, and speaking at a conference. On a personal level, being a bridesmaid twice and my nieces and nephews being born, moving out of home for the first time and moving house again, learning to drive, having a breakdown and being signed off work, finally getting a hold on my panic attacks and anxiety, two huge holidays (and numerous smaller ones), being diagnosed with a vestibular disorder which gives me vertigo, being diagnosed with endometriosis, film reviewing for community radio, and a lot of writing in a view to finally finishing the book in my head.

As Leela, for the space-themed Christmas party

I could only have managed to achieve and weather these significant life events with a secure grounding, at home yes, but also at work. I've been struggling with the change of job for that reason, not having the rock of CJBS any longer, though it has felt less of a rock recently. What's worse is that I've pulled the rug from under my own feet. But now life is feeling steadier again; I always adapt well to change, it's the anticipation that gets to me; I now feel able to finish this post.

Giving a presentation. Photo credit: camlibs

Cambridge Judge Business School has given me so much: my first permanent job after graduating from University; my vocation in life as a librarian; a chance to use my personal experience with mental health professionally as a Wellbeing Advocate which I can continue at the Faculty of Classics; and most importantly, friends for life. The attitude, community and atmosphere has made me feel I belong. To feel included is a wonderful thing. But I can't put it off any longer: to paraphrase Cecelia Ahern’s new book Postscript, just because saying goodbye is so hard isn’t a reason to stay.

Getting my staff recognition award. Photo credit: no doubt Dave Amann

Obviously this is an anxious time for me, with the uncertainty of what lies ahead utmost in the doubt I had about leaving. I must admit on the first day of my new job, I did think, "What have I done?" CJBS is a wondrous place. However this is mitigated by the places I've gone to to as I already know people, there is a great community around me, surrounded by lots of fantastic libraries and already knowing a lot of the software, processes and policies I've taken on. I've been reflecting on my reasons for leaving, which are numerous, questioning whether I've made the right decision; burnout is certainly in there; progression and development is a major factor; changes that have been made within the School, the team and to my job; and obviously the sheer number of years working there. I need new inspiration, to further my confidence and to find a new home knowing I'll always have this one to come back to.

Dressed up for my final work Christmas party in 2018

It made it so hard to leave, I felt so at home; it is a kind of grief, which I'm slowly coming out of now I've been in my new job for two weeks. But I took my leave in increments, telling certain people in person alone who I wanted to hear it from me, some were really positive, some were sad and one made me downright teary! It gave me the chance to show my appreciation and thank them for making my worklife better, easier and more fun. We don't tell the people in our lives what they mean to us, what their actions have done for us and what impact they have made on our lives. Being given the opportunity to do just that was a blessing. I hope it was as moving, uplifting and confidence-boosting for them as it was for me.

Another of the random things I had to do for CJBS, screenshot from a video filmed by Dave Amann (you can find the full video online if you know where to look (I'm not telling you!)

I'm not saying goodbye though as I'm going to stay in touch with many of the people, as you wish, even if it's just on Facebook, but I've not gone far, just down the road. Cambridge is such a small place, I'll bump into people, see them at events and on my commute to and from work. Now, bring me that horizon.

Cambridge Judge Business School e-luminate-d

P. S. I hope you found all my references in this post (Douglas Adams, The Princess Bride and Pirates of the Caribbean). The title for this post was taken from the document I wrote listing all the things I hold to take myself off of in terms of websites, databases, files, intranets, wikis and posters, as well as clearing out my desk, folders and any remnants of me that are left behind. I'm still doing it to this day! I literally have to delete myself.

The photo that is up on many of the University's pages. Photo credit: Sir Cam

NB: Parts of this post were shamelessly taken from the email I sent out to say I was leaving, crediting myself in case of self-plagiarism!

As a mummy for Comic Relief (yes, that is me in there)

Mental health and physical health

I feel like a fraud. It's taken me this long to write a post for Mental Health Awareness Week as I found out last weekend that my mental health problems stem not just from one chronic illness that causes my physical symptoms, but now two. I know I shouldn't blame all of my mental health problems on my physical health, but they play a significant part.

It is true that sometimes it's difficult to know where physical health and mental health start and end. Which is the chicken and which is the egg? For me, I question whether the physical health problems I didn't know I had caused the anxiety, or if the anxiety was there already. What a lot of people don't realise is the sheer gamut of physical symptoms mental health problems can cause. I've made a list at the end of this post of those I've experienced, differentiating between anxiety and panic attacks.

However my anxiety issues started, they are here to stay. They can be situational such as when I have to teach, go on a date, or travel by plane. They can be due to memories such as seeing a person who reminds me of bad times, songs that evoke negative emotions or anything that brings up when I was bullied at school. They can also be muscle memory as anything that increases my heart rate, gives me butterflies in my stomach or affects my breathing can bring on anxiety as my body equates those functions with an attack. Exercise can be problematic and I avoid being overly excited.

I have chronicled my vestibular problem before and the moments of seemingly random out of the blue vertigo started at a similar time to my panic attacks, which lead to generalised anxiety (GAD). However, after almost three years of again seemingly random out of the blue gut problems, which I initially dismissed as caused by my anxiety, then possibly by a tropical holiday, then by my diet, then by something more sinister, then dismissed as IBS, it turns out they're caused by endometriosis, which can cause dizziness and anxiety, along with other mental health problems. I was passed around the hospital, visiting many different departments, with frequent tests, procedures and treatments over those years; some were disruptive and some were downright disturbing, but I got to know how amazing the NHS is far more than I have ever done.

That said, when you have a history of mental health problems, no matter how great the system is, you will come across people, from the most harried of GPs to the most senior of consultants, who take one look at your medical record and write your symptoms off as psychosomatic or just another manifestation of anxiety. However I knew there was something wrong. I knew my body. That is one of the upsides of having a mental health problem, you become very self-aware, hyperaware almost. I'm an introvert and highly sensitive, so it's more pronounced for me. That's why I love that there's a move to rebrand hypochondria as health anxiety. So any change, yes you question whether it's just another anxiety symptom, but after living with anxiety for half my life at that stage, I knew it wasn't. Apart from the sudden onset and the fact that I was in the best place with my anxiety than I had ever been due to undergoing cognitive behavioural therapy (CBT), I knew the effects of anxiety inside and out; I had lived through the vast majority of them right up to and including a mental breakdown.

So I had to fight, just like I had to fight for my vestibular diagnosis. I wish I didn't have to, but I'm lucky that I haven't experienced as much of the stigma towards mental health as I know others have. Every test they did, there was a valid reason to do it and every time it came back negative, equivocal or there was no improvement, I forced the issue. That's why it took so long, they had to rule out a tropical disease with blood and stool tests, a parasite by sending samples to a special centre, coeliac disease with more tests, food allergies and intolerances with elimination diets, something more sinister with endoscopies, via a leftfield nuclear medicine scan until finally I had the third MRI of my life, which revealed the problem. I could have given up, but the doubters, including me at times, were wrong, my concerns had been validated and once more my perseverance has been justified.

Everything is interconnected and the endometriosis, which with hindsight has been causing increasing severity in my period-related symptoms over the years, but, in medical terminology, has an unusual presentation because the gynecological symptoms aren't significant and the gut problems are far worse. The only pattern, not dietary, not regular and certainly not serious, but still affecting my quality of life, was that time of the month. It is another cog in the wheel of understanding my gradually worsening health where it feels like my body is beginning to fail me and there's no cure, just management. The not knowing, the uncertainty was unbearable, but a diagnosis, that I can live with.

TRIGGER WARNING, these symptoms aren't pretty, but I don't get most of them anymore:

Anxiety:

• Weakened immune system leading to colds and bugs
• Lack of energy and motivation
• Lack of concentration due to racing and spiralling fixating thoughts
• Dizziness
• Breathlessness and shallow breathing
• Muscle tension meaning diarrhoea, constipation and stomach cramps
• Muscle tension leading to pain in the shoulders, neck, back and jaw
• Dental pain due to clenching of the jaw
• Headaches
• Nausea
• Restless legs, jitters and fidgety behaviour, including eye twitching
• Food cravings, usually sugar
• Loss of appetite
• Sudden need to pass water
• Intense thirst
• Sweating, including night sweats
• Hypersensitivity of the skin
• Sleeplessness and insomnia
• Hot flushes
• Reliance on distractions such as TV and alcohol

Panic attacks, in order of occurrence:

1. Hyperventilation (but you don't realise)
2. Pins and needles, usually in the extremities, but starting in the nose
3. Feeling of handcuffs around the wrists
4. Wind: burping and farting
5. Bodily functions stop such as sneezing, digestion and oxygen to the extremities
6. Tight chest so it feels like you can't breathe
7. Heart palpitations so it feels like you're having a heart attack
8. Hot flushes so severe you start to take your clothes off
9. Claustrophobia so you have to take anything constricting off including your bra and jewellery
10. Self-harming through pinching to relieve the pain inside
11. Vertigo meaning severe nausea
12. Throwing up
13. Shaking
14. The need to be as low to the ground as possible, usually on the floor
15. Can't take in food or liquid as throat closes off
16. Severe tension in limbs so you can't move
17. Severe tension in the jaw so you can't speak
18. Need to have people around, but not liking to be touched
19. Feeling of impending doom
20. Whiteout where you lose your vision and feel like you're going to faint

Afterwards I get thirsty but can only sip, the shakes, cold chills, diarrhoea and severe fatigue. That's the adrenaline comedown. It's good to feel the cold as that's the first sign I'm coming out of it. The next day I feel hungover and I often find bruises where I've unconsciously pinched myself.

They say you can't pass out due to a panic attack, but I beg to differ, particularly when they're this severe. Also, they say they only last 15 minutes, which may be true, but you can have another straight afterwards; I had panic attacks all day every day for almost a week which came in waves and left my legs black and blue as I had been pinching them so much. I wish I'd taken a photo so people can see, but also not as it could encourage self-harming and it was that shocking, I don't want to remember.

However writing posts like this is important as it not only helps others understand their own mental health conditions and if I help just one person, then that's a success, but it also shows me how far I've come, what I've lived through and how strong I can be. Some days I need that.